Caring for someone with Alzheimer's disease or a related illness is either a transformative experience or a nightmarish task. The disease process disrupts all the lives involved.
As the disease process varies for each person, so does the caregiver's ability to adapt, however, a common feeling unites them, that of guilt.
How can we try to live a normal life when all our attention is directed towards our loved one.
The more the disease progresses and the loss of capacity increases, the more the caregiver is drawn into a spiral of action, sometimes acrobatic, of doing more, doing more without being able to slow down, until he or she forgets to live his or her own life.
A great deprivation for the person being cared for and the caregiver towards the end of the evolution of Alzheimer's disease is not being able to communicate and get in touch with words because, sooner or later, the words are missing, the understanding is more and more complex and their memory fades away...
Why not transform Alzheimer's into humanitude, like Alzheimers!
This would mean changing the way we look at the person being cared for and at ourselves. As each person is unique, what works for one person may not work for another, but our loved ones like to reminisce about their past.
Take some time with them to look at their photos and write down their life story before the disease stole all their sweet memories.
And why not! Read their life story aloud when communication breaks down. Hand in hand, they will feel your warm presence and hear the comforting sound of your voice.
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